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Ontario Prader-Willi Syndrome Association

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Contact Information
Office Phone 416-481-8657
Toll Free Phone 1-800-563-1123
Primary Contact Jennifer Coens, Executive Director
Address & Map
Toronto, ON
View Google Map
Mailing Address PO Box 73514 
Toronto, ON M6C 4A7
Physical Access Not Applicable
Description & Services
Description (Service) Enhance the quality of life for individuals with Prader-Willi Syndrome (PWS) 
Supports the PWS community by: 
* providing crisis counselling 
* advocating 
* providing free fridge locks to Ontario members 
* hosting biennial Fall Conference for families and caregivers 
* ensuring that Ontario families have access to a PWS Clinic and educational resources 
* hosting family gatherings throughout the province to provide an opportunity to connect and share experiences 
* organizing a week of camp for teenagers and adults with PWS at Shadow Lake Centre with a portion of the fees subsidized for each camper 
* holding a Family Fun Day for families with PWS 
* loaning trikes to young children with PWS in Ontario 
* monthly newsletter communicating updates on upcoming events and the latest research
Hours Irregular, call for details
Areas Served Ontario
Eligibility Individuals with PWS, their families and interested professionals or individuals
Application Apply through the website
Languages English
Other Details
Social Media Facebook Facebook:
Twitter Twitter:
Legal Status (50) Non Profit ; (51) Registered Charity
Established 1982
Funding Donations - Charitable Registration Number: 119068203 RR0001
Elections The Board of Directors is elected.
Print Material Publications can be found on the website
Date Updated 17 Jun 2019
Service Categories Disease/Disability Information ~ Prader-Willi Syndrome ; Health/Disability Related Counselling ~ Prader-Willi Syndrome ; Parent Support Groups ~ Prader-Willi Syndrome ; Voluntary Health Organizations

For Information on non-emergency social service programs contact 211 available to answer your questions 24 hours a day, 7 days a week. Data provided by Volunteer & Information Quinte 613-969-8862.

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